• What is umbilical cord blood?

      Umbilical cord blood is the blood that remains in your baby's umbilical cord and placenta after birth. It’s rich in stem cells, which can be cryopreserved for future medical therapies, including stem cell transplants.

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    • What are stem cells?

      Stem cells are the body's building blocks. The umbilical cord is one of the richest sources of these valuable cells, acting like a “bio repair kit” ––healing, rebuilding, and regenerating other cells. They can be used to treat various conditions, including leukemia, lymphoma, and other blood-related disorders.

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    • Why should umbilical cord blood be preserved?

      Cord blood is an incredible source of hematopoietic (blood-forming) stem cells. The FDA has approved these cells to treat over 80 disorders, including immune and genetic conditions, as well as certain cancers. For some diseases, stem cells are the primary treatment; for others, they might be an option when other treatments haven’t worked or are part of experimental therapies.

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    • What happens if cord blood isn’t collected and banked?

      If not collected, the cord blood is typically discarded as medical waste.

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    • How successful are cord blood stem cell transplants?

      The first umbilical cord blood transplant took place in France in 1988 on a patient with Fanconi’s anaemia wherein the donor was the patient’s sibling, and this patient is alive still today. Today, cord blood has been used in more than 60,000 successful transplants globally and is used to treat over 80 different conditions and diseases. Cord blood derived stem cells typically require lower match parameters and are also more acceptable than those from bone marrow, hence they are easier to find and carry higher probability of successful transplants.

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    • How can my newborn’s saved cord stem cells be used?

      The preserved cord blood and tissue stem cells are a perfect match for the donor and carry a 25% likelihood of being a match for siblings. Cord blood stem cells offer higher match rates via Human Leukocyte Antigens (HLA) typing, hence greater the chance that the patient’s body will accept the donor’s stem cells. In addition, there is a 10% lower risk of Graft-versus-host-disease, a significant complication in stem cell transplants, than those who had transplants from unrelated donors, like bone marrow transplants.

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    • I've already saved one child's cord blood. Is it important to save cord blood for all my children?

      Yes, because each baby's cord blood is an exact genetic match for that child and offers the very best chance of survival, should they need a stem cell transplant in the future. Also, if a doctor recommends a donor cord blood transplant, siblings are the preferred source. It is recommended to consider this once-in-your-child’s-lifetime opportunity, as the donor’s stem cells could potentially be useful to other family members who may need them, including siblings, parents and grandparents.

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    • How soon should I enroll with private banking at Abu Dhabi Biobank?

      Though the decision to bank your baby's cord blood can be made any time before the birth of your baby, proactive planning has many advantages. We recommend early enrollment to ensure that your family has plenty of time to receive your Abu Dhabi Biobank collection kit and review the information provided within. Families who enroll early avoid the risk of missing their only opportunity to bank their baby's cord blood.

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    • What are the banking costs and what do they include?

      We are dedicated to making cord blood and tissue banking accessible to everyone and have a suite of options for you to choose from. We simplify the pricing structure by combining processing and testing fees to encompass all upfront expenses and have easy payment plans, full refunds and other rewards to celebrate the arrival of your precious little one. The pricing provided is for a single child and there are no hidden fees.

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    • Are there any discounts and easy payment options?

      We are making cord blood banking affordable and more relevant through our competitive packages, thoughtfully relevant rewards, full family coverage with screenings and option to pay in easy monthly payments as per your preferred bank's policies. We are partnering with major banks and payment providers, so that Abu Dhabi Biobank clients holding cards from participating banks will have the option to convert their purchases to monthly installments directly with the card issuing bank. Repayment tenures of up to 12 months will be at no additional cost to the client.

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    • Can I withdraw consent after sample collection, or will I be refunded if my child’s sample is found to be unsuitable for banking?

      Abu Dhabi Biobank will inform you in case the sample is found to be unsuitable for future use and therefore banking it may not be particularly helpful. As our valuable client, you have the right to terminate the agreement at any time, and the applicable refund scenario detailed in the contract will be followed. Please refer to the refund schedule in the agreement for more information.

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    • Will I be charged a collection fee by my healthcare provider?

      You will not be required to pay cord blood (and tissue if applicable) collection fee to the hospital, if delivering at a partner hospital. As a DoH licensed facility, we service all leading maternity hospitals in the emirate of Abu Dhabi. Talk to our experts or check our website to learn more about our partner hospitals.

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    • How successful are cord blood stem cell transplants?

      The first umbilical cord blood transplant took place in France in 1988 on a patient with Fanconi’s anaemia wherein the donor was the patient’s sibling, and this patient is alive still today. Today, cord blood has been used in more than 60,000 successful transplants globally and is used to treat over 80 different conditions and diseases. Cord blood derived stem cells typically require lower match parameters and are also more acceptable than those from bone marrow, hence they are easier to find and carry higher probability of successful transplants.

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    • Is collecting cord blood safe for mother and baby?

      The process is safe, painless, and non-invasive for both the mother and the newborn. Cord blood is collected after the baby is born and does not interfere with labour, delivery, or postpartum care.

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    • How is cord blood collected?

      After the baby is delivered, a healthcare professional will collect the cord blood in a swift 10-minute process using a sterile needle attached to a bag.

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    • How long will the umbilical cord blood be stored?

      Cord blood can be securely stored for up to 30 years.

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    • What should an expectant mother do to donate cord blood?

      To donate, simply reach out to the hospital’s donor team, or contact the Abu Dhabi Biobank directly at 800 213. Our medical advisors will guide you through the process and registration.

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    • What happens to the cord blood after collection?

      Once collected, the cord blood is tested, processed, and cryopreserved at our state-of-the-art facility in Masdar City, Abu Dhabi. We are licensed by the Department of Health – Abu Dhabi and are the region’s largest hybrid cord blood bank.

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    • What are the chances my newborn will need their own cord blood?

      The likelihood is estimated at 1 in 20,000 to 1 in 250,000.

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    • Is cord blood donation ethical and compliant with Sharia law?

      Yes, cord blood donation is considered ethical and approved by Sharia law.

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    • What lab tests are performed on the cord blood sample?

      The collected cord blood undergoes testing to ensure its safety and viability for potential use. Tests include checks for sterility, cell counts, and maternal infections like HIV and malaria.

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    • Can I withdraw my consent to store the cord blood?

      Yes, you can withdraw your consent at any time by contacting us. We’ll guide you through the process and ensure the cord blood is discarded in accordance with our protocols, sending you a confirmation once it's complete.

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    • How can I ensure my data remains confidential?

      Your health information is handled and stored securely in compliance with UAE laws, ensuring your privacy is protected.

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    • What is the purpose of the Abu Dhabi Biobank?

      The purpose of the Abu Dhabi Biobank is to collect biological samples and health-related data such as health records, environmental exposures, physical measures etc., from a representative sample of the population in Abu Dhabi to establish a valuable biomedical research resource that supports diverse health-related, clinical, and pharmaceutical research to promote health and wellness in Abu Dhabi and internationally.

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    • How many participants will be recruited as part of the Abu Dhabi Biobank?

      There is no upper limit on the number of participants that can be recruited. The Biobank can store up to five million samples, with the potential for further expansion if required.

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    • Who will have access to my samples and data?

      Approved researchers from academic institutions, industry partners (including pharmaceutical companies), government organizations, and charities in the UAE and internationally (subject to the related governmental authorities), can apply for access to the Abu Dhabi Biobank’s resources.

      Access is strictly regulated and governed by the Department of Health Abu Dhabi to ensure only approved research and researchers working to improve human health can use the resource.

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    • How will researchers access my samples and/or data?

      Access is strictly regulated by healthcare authorities and subject to the applicable laws in the UAE. Access to de-identified samples and data will be strictly controlled and regulated.

      Researchers will have to be registered with the Abu Dhabi Biobank and request access to the specific samples and/or data they require. This will be reviewed by the Abu Dhabi Biobank’s Access Committee, and all research will have to be approved by DOH Institutional Review Board (IRB) to ensure its validity (i.e., are addressing legitimate research questions and will the resource add value to their health-related research).

      In return, researchers are required to share their findings, including derived data (such as those derived from testing of samples). This will be incorporated into the resource to enrich it further for future research.

      Researchers will only have access to de-identified data, ensuring personal information (e.g., name, contact details etc.) remains confidential and cannot be used to identify individuals.

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    • What data will be linked to my samples?

      In accordance with approval from DoH and other relevant authorities, the biobank will access, store and continually link health-related records and metadata from various sources:

      1. Electronic Medical Records (EMR) such as Malaffi
      2. Other databases and studies, such as the Emirati Genome Program (EGP), Population Genome Program (PGP), and data from screening initiatives like IFHAS
      3. Sample-derived data and data collected from physical measures (e.g., health, weight, blood pressure
      4. Other data that could have an impact on your health such as lifestyle, environmental, diet etc.
                    
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    • How long will the data be collected and stored?

      The Biobank will continue to collect information from your health records as long as it exists, potentially for decades. If you remain part of the program, information will be linked and collected throughout your lifetime and, even after your incapacity or death.

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    • Will I receive feedback about my samples, measures, or data?

      The Abu Dhabi Biobank is for research purposes only, not for diagnosing or treating diseases and may take several years to determine any findings.

      Any results generated from the Abu Dhabi Biobank may not be shared with you to the full extent allowed by law. However, DoH may contact you regarding research findings from the Abu Dhabi Biobank.
                  

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    • Will I be financially compensated?

      You will not receive any financial compensation for participating. Participation is entirely voluntary, with the primary aim of advancing medical research.

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    • What will I be asked to do if I participate in the Abu Dhabi Biobank?

      If you voluntarily decide to participate in the ADBB, you will need to read and sign the Informed Consent Form and complete the following activities as part of the biobank protocol, conducted in two phases:

      Pilot Phase: Collection of biological samples (new, leftover, or in combination) and health data to refine and optimize Phase 1 processes.

      Phase 1: Collection of biological samples (new, leftover, or in combination), physical measurements, health-related data and questionnaires.

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    • How will my samples be taken?

      Samples will be collected by trained medical staff following written procedures to ensure safety and quality. Typically, blood, urine, saliva, and physical measurements (if applicable) will be taken during your scheduled appointment.

      If leftover diagnostic material (e.g., tissue from pathology labs) is available, it may be donated/transferred to the Abu Dhabi Biobank, provided it has been de-identified and is not required for clinical use.

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    • Can I volunteer if I have a medical condition?

      Yes, the ADBB welcomes participants of all health statuses, provided they sign the voluntary ICF, either independently or with the assistance of a witness or legal guardian.

      Participation is encouraged from both healthy individuals and those with medical conditions, including physical and mental health disorders, to ensure an unbiased and comprehensive representation of the population for future health-related research.

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    • Will you contact me again in the future?


      If you agree to participate in the ADBB, we may contact you in the future to:

      • Invite you to participate in other health-related research studies based on your health data (e.g., genes, lifestyle, or medical conditions)
      • Provide updates about the Abu Dhabi Biobank program
      • Request feedback on your experience with the Abu Dhabi Biobank
      • Ask you to complete additional questionnaires to enhance the resource
      • Invite you to provide additional or repeat samples (e.g., blood) or attend other health assessments (e.g., imaging)

      Participation in any additional activities is entirely voluntary. You can decline future requests without affecting your current involvement in the Abu Dhabi Biobank.

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    • Can I withdraw from the Abu Dhabi Biobank after participating?

      Yes, you can withdraw at any time without penalty or the need to provide a reason. Withdrawal will not affect your healthcare.

      There are two withdrawal options:

      1. PARTIAL WITHDRAWAL:

      1. ADBB will no longer contact you or collect additional information from your health records.
      2. However, your existing samples and data may still be analyzed and used for ongoing or future research.

      2. FULL WITHDRAWAL:

      1.  All your data and samples will be destroyed, and you will no longer be contacted.
        Note: Your data may still be part of research completed before your withdrawal, as we cannot remove it from studies already underway.  
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    • How can I contact the Abu Dhabi Biobank?

      You are not only welcome but also entitled to ask us any questions you may have about biobanking.

      Abu Dhabi Biobank is here to support you and encourages you to reach out to us through the following channels:

      • Telephone: 800-213 (UAE Toll Free)
      • Email: panhumanbiobank@m42.ae
      • Address: Office W2, Unit 01, Plot J03 (P-29), Masdar City, Abu Dhabi, United Arab Emirates
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